How should end-of-life Advance Care Planning discussions be conducted according to patients and informal carers?

Greater ManchesterGeneric Health Relevance
Start Date: 1 Jan 2018 End Date: 30 Jun 2018

About this project

As part of CLAHRC GM's work around end-of-life research priorities, local stakeholders identified that further research on Advance Care Planning (ACP) was a key priority. So this is being investigated further by conducting a systematic review to synthesise the existing research literature pertaining to patients’ and carers’ perspectives on ACP discussions.

Why is it important?

ACP is an internationally-recognised term to describe discussions between people, their families and informal carers, and health care professionals about a person’s future preferences for care. ACP can have positive effects on the quality of end-of-life and in the UK it is endorsed by a range of organisations including the Department of Health, NICE, and the General Medical Council. There is a body of guidance for professionals about the general principles of ACP but there is a lack of clarity about how patients and carers feel ACP discussions should be conducted.

How will we do it?

This systematic review will synthesise the existing research literature pertaining to patients’ and carers’ perspectives on ACP discussions. This work is guided by consultations with carers and healthcare professionals as part of a CLAHRC-GM priority-setting exercise, in which all stakeholder groups identified ‘planning end-of-life care in advance’ as one of the most important topics for end-of-life research. The researchers aim to address the following broad questions arising from the CLAHRC-GM priority-setting exercise: How are ACP discussions held with patients and carers, and how should they be held? What are patients’ and carers’ understandings of ACP? Who do they feel should be initiating ACP conversations? When is the most appropriate time to have ACP discussions? Do they feel ACP discussions are valuable?

Contact 
Professor Gunn Grande
Gunn.Grande@manchester.ac.uk